Wrapped in my Cripple Blanket (one of those plaid ones) I'm sat up at night contemplating the juncture my life has come to.
“The criteria for primary progressive #MS are a gradual progression of symptoms (normally of at least a year’s duration) and two of the following: a positive lumbar puncture, at least two spinal cord lesions, at least one lesion in at least one of the three specified brain areas.”
I have a positive lumbar puncture (with 1 O-band), and two spinal cord lesions, and two areas of 'high energy' that have been disseminated in time and space- i.e. first MRI showed one, second showed two. So, that's p much hitting the criteria there - annd this has been investigated for just over a year.
The 1st time I read about #MS (multiple sclerosis) was actually in Goffman's Stigma, where he relates a testimony written by a 'multiple sclerotic' - the text describes a man who is looking in the mirror, aghast at what he 'has become'. I always found this portrayal kinda shit, #MS is progressive sure, but progression of impairment doesn't have to be viewed negatively at all. My #dysarthia and mobility impairments progressing has actually gone some way to freeing me to more easily be myself, because I can't pretend anymore to be abled - I can only be what I am.
There is a certain freedom in that.