In the chaos of Amazon breaking the internet this morning, I forgot to share about a very important day for me.
Today, the last day of February, is #RareDiseaseDay. (It's still February here on the US west coast!) Why is this day important to me? It's because of multiple rare diseases that Miniature Monkey Creations exists.
In 2009, I was working with medical research databases and had just gone back to school for my masters degree in Information Management. My husband and I got married and bought our house that year. Life was good. Then in October, my life changed in an instant as my unrelenting chronic headache disorder struck. It was nearly 2 years of seeing one doctor after another before I finally saw a neurologist who could give these headaches a name - Paroxysmal Hemicrania (https://www.ninds.nih.gov/Disorders/All-Disorders/Paroxysmal-Hemicrania-Information-Page). Unfortunately, being diagnosed didn't lead to a cure, a common problem for rare disease patients.
Being disabled with a disorder triggered by movement meant I needed to find an activity I could do while sitting still. For me, that activity is #crochet. It's something productive that I can do even on my worst days. In fact, those days are when my best #monkeys are born. I know them so well that I don't need to think too hard about what to do next. I can calmly count my stitches and picture how the colors will look together, and that's a great distraction from my pain. When you buy one of my monkeys or shawls, you're not just getting something #handmade for you or a friend. You're also helping me remain productive despite being #disabled by a #raredisease.
You can read more about Rare Disease Day at https://rarediseases.org/for-patients-and-families/connect-others/rare-disease-day/ (Fun fact: Paroxysmal hemicrania is so rare that it's not in the rare disease database!)
You can see more of my work at https://miniaturemonkeycreations.zibbet.com/